Actually, I'd rather not have to. Lupus is kicking my butt, and there's no two ways about it. I've got all three types -- diskoid lesions, systemic, and CNS. Plus, I've also got RA and a few other auto-immune disorders as well.
It is extremely frustrating not to do all the things I want to do. Some I simply can't do any more, such as horseback riding and backpacking. Others I have to measure out in careful little energy-expenditure packets, such as working in my studios or writing. And all too often I have to force myself to be still and simply give my body the time it needs to get a grip on itself again.
Thank goodness I found an excellent rhuematologist -- Dr. Micheal Rezaian. It's also helpful that both my sisters also go to him...that way he really gets a good view of the familial (genetic) patterns.
I live with lupus another way, as well. My eldest sister is severely disabled from lupus (all three kinds again) plus other auto-immune problems. We have lived together for several years now, from before either of us had to go on disability. As it stands, I am still able to do caregiving for her....but it also means I'm seeing a closeup on where I am likely to be in a few years. Scary.
On the plus side, we are able to support each other as we both go through this process... Frustrations shared become less frustrating. And we are very good at coaching each other as we work to stay positive and as active as possible, without overdoing.
It continues to be a goal to accept and live with lupus, within the constraints it imposes. Wish me luck!